The Dance of a Thousand Hands.
I'm working on my graduate thesis at Delta State University (fear the Fighting Okra!) and I'm looking adults with disabilities to take part in an online survey. The survey will probably take 15-20 minutes to complete and it's about how social friction is perceived in interactions between disabled and able-bodied people. So if you're 18 or older and self-identify as disabled or partially-disabled, I would love to hear from you on the survey:
"Let Me Get That For You": Analyzing Frictional Situations in a Disability Context (via Google Forms)
This research survey has received approval (IRB number 2025-037) from Delta State's Institutional Review Board. It will be live and accepting responses for the next 4-6 weeks depending on the number of responses received. But there's also something for you!
The survey itself is anonymous, though you can optionally enter a drawing for an Amazon gift card at the end of the survey. I can't buy a gift card for every response (as much as I would like to be able to do that) but I can give away a token of appreciation to a randomly selected portion of you. Email addresses are collected only for those who wish to participate in the raffle; any collected emails are deleted after each weekly drawing and only used to contact whoever won that week.
If you have any questions about the project, feel free to send me a message on tumblr!
FYI to sick or disabled folks and those who assist or care for them: Simplicity patterns has a new line of adaptive sewing patterns. Designs include tops with port access, clothing with velcro closures, bags and cushions for mobility aids, bibs, chemo hats, and more.
I’m excited about these because they are the first patterns of this kind I’ve seen anywhere. And Simplicity patterns are great for beginning sewists, with very clear step by step instructions and illustrations.
Patterns can be purchased here: https://simplicity.com/simplicity/adaptive/
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As a part time user of crutches (specifically smartcrutches, hence the below image), I've found a couple small products have been able to improve the quality of my experience when using them out n about n decided i might as well make a post with them on :) i might add more as i try out other things in the future and such also
The first thing is a small storage bag to attach to your crutch, you can get ones made specifically for crutches, and smart crutch even has their own branded one for the sizing of their crutches, but I got a bag intended for use on bicycles and found that it fit quite well for a fraction of the price, and likely would also do so on normal forearm crutches. I can't put too much stuff in the bag for regular usage as it would throw off my balance but it's great to have my phone and some change in to be within easy reach.
The second thing is new ferrules, specifically I got flexyfeet's ferrules which are available in a variety of sizes to fit pretty much any crutch or cane, they have shock absorption and their flexibility also means I get a lot more grip and feel safer walking with them than I did with my previously very worn down standard ferrules.
So many people wouldn’t have asthma in the first place if it wasn’t for these corporations…Shifting blame from actual culprits to people with asthma (and people who can’t help but use plastic straws at that) is peak capitalism.
This is that giraffe bottle i was talking about in case anyone else with complex needs wants it. It's pretty cool and I'm definitely keeping it in mind for when I eventually DO need to transition to something that doesn't need to be picked up at all.
What able bodied authors think I, an amputee and a wheelchair user, would want in a scifi setting:
Tech that can regenerate my old meat legs.
Robot legs that work just like meat legs and are functionally just meat legs but robot
Literally anything that would mean I don't have to use a wheelchair.
If I do need to use a wheelchair, make it fly or able to "walk me" upstairs
What I actually want:
Prosthetic covers that can change colour because I'm too indecisive to pick one colour/pattern for the next 5+ years.
A leg that I can turn off (seriously, my above knee prosthetic has no off switch... just... why?)
A leg that won't have to get refitted every time I gain or loose weight.
A wheelchair that I can teleport to me and legs I can teleport away when I'm too tierd to keep walking. And vice versa.
In that same vein, legs I can teleport on instead of having to fiddle around with the sockets for half an hour.
Prosthetic feet that don't require me to wear shoes. F*ck shoes.
Actually accessible architecture, which means when I do want to use my wheelchair, it's not an issue.
Prosthetic legs with dragon-claw feet instead of boring human feet or just digigrade prosthetics that are just as functional as normal human-shaped ones.
A manual wheelchair with the option to lift my seat up like those scissor-lift things so I'm not eye-level with everyone's butt on public transport/so I can reach the top shelf by myself.
A prosthetic foot that lights up when it hits the ground like those children's shoes.
A friend of mine recently broke her foot.
She's a wonderful friend. A deeply kind and considerate person. One of the first things she did after getting out of the hospital was to apologize to me.
"I'm so sorry. I had no idea."
"Hun, you're the one with the broken foot. What are you talking about?"
"I had no idea it was so hard for you all the time... There are stairs everywhere... Even in places where there's supposed to be a lift. And often the lift doesn't work. And there's pavement where my crutches keep getting stuck.... I'm so tired because walking like this isn't the same but there are no benches where I can rest....
You tried to explain and I thought I understood.... But I really had no idea. And this is what it's like for you ALL THE TIME.... I'm so so so sorry"
God how I cried.
btw while people continue to fight the system don't forget about Undue Medical Debt (formerly RIP Medical Debt), a charity that buys and forgives medical debt. on average a donation of $10 will forgive $1,000 of medical debt.
"gnc straight man being called a faggot doesn't experience homophobia" what the fuck are you talking about. there's absolutely no logic in anything like that. we have kids who literally killed themselves because of homophobic abuse in schools and you would dare to tell them it isn't homophobia that killed them because they weren't actually gay? insane. and so fucking cruel
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