Living With Chronic Pain Is So Weird.

Living with Chronic pain is so weird.

In every quiet moment there’s pain.

If some asks me how I am I usually say ‘fine’ or ‘good’ or ‘a bit tired’

because those are easier to say than ‘I’m in a lot of pain’ ‘I’m this close to passing out’ ‘if I move to quickly I will throw up’ 

and sometimes when people say ‘How are things going?’ 

I shrug and say ‘the usual’

and they assume that means everything’s fine because for them that is the usual

but for me the usual is pain.

More Posts from Girlish-in-pain and Others

2 years ago

First day of med school some of the older students "dress up" as and pretend to be first years. I spotted four of them within 15 minutes and one of them was in a wheelchair with a leg and an arm in casts and a neck collar on. So basically, he was pretending to be disabled. And most of us knew that he was a fake first year and I overheard people joking about pushing him out of his wheelchair to prove he was faking it. I don't understand how a group of future doctors sat around a table and decided it was a good idea to have a fake disabled person there. It just perfectly sums up the attitude of most doctors.


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1 year ago

Maybe in another universe I'm not the sick girl.

2 years ago

Can't believe it took me 8 years to realise that the random pain I get in half of my face for a couple of days to a week every other month is a migraine...

I always thought it didn't matter bc it's not every day like my fibro pain


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7 years ago
That One Night Where Australia Is One Of Us

That one night where Australia is one of us

4 months ago

Disabled trans guy escaping abuse

A photo taken of me (pale, androgynous guy in a tie dye hoodie) in the dark.
A photo of my black cat loafing in a gray fabric box. One eye has blue-grey cataracts, and the other has an extra eyelid, making the eye seem black.

Hi friends! I'll try to keep this short (long version under the cut), but I need help. I may be getting into a housing program soon, made the mistake of telling my parents, and today they've been manipulating me trying to get me to stay. There's a long history of abuse, neglect, transphobia, and ableism - mainly on my dad's part.

I have $24 in my bank account. I can't drive, can't work, and am severely disabled. My mom wants me to make her and my father into healthcare proxies. When I was younger, my dad threatened me with institutionalization and conservatorship. I'm scared for my safety.

I just need some help. I'll apply for assistance when I qualify. I'm gonna need an emotional support animal. I don't know if I'll get the apt yet but see the cut for an explanation.

Venmo: julesfairy

I don't know what goal to set so I'll update this post when I can. Reblogs help a lot, if anything for knowing I'm not alone.

Long version: I'm 23, mentally ill/disabled, have no income, $24 in my bank account, live with my abusive father, and my parents refuse to call me my name/pronouns/etc. I also just left a cult-like group and found out I have a shit ton of nerve damage all over my body. So I'm having a time!

Anyway. I mistakenly told them that I've applied for a housing program and may be getting into a 1 bedroom apartment. They do not want me to leave, and today lovebombed, gaslit, and otherwise manipulated me into staying.

WHY I'M MAKING THIS POST NOW:

They know I'm meeting with the case worker tomorrow.

I don't know how they're going to react once they realize I'm going through with this. I'm worried about my father's reaction specifically - In the past, he's threatened to kick me out, kill himself, throw me in the psych ward, or put me under conservatorship. My mom just told me she wants me to make her and my father my healthcare proxy.

If I get this apartment, I'm going to apply for SNAP and Temporary Assistance as soon as I qualify, and rely on food banks. But if anyone can spare some cash, that'd help a lot too. I just need some help, I'm desperate. I don't know if I can take another failed escape.

7 months ago

sometimes i think ive made peace with being permanently disabled & feel like even tho it sucks i can handle it. and sometimes i have to scream and scream and scream and cry myself to sleep because this is forever & i dont know how i’ll manage that

5 years ago

a fools guide to not wanting to die anymore

by me, a fool who doesnt wanna die anymore 

never make a suicide joke again. yes this includes “i wanna die” as a figure of speech. swear off of it. actually make an effort to change how you think about things.

find something to compliment someone for at least 4 times a day. notice the little things about the world that make you happy, and use that to make other people happy.

talk to people. initiate conversation as often as you possibly can. keep your mind busy and you wont have to worry anymore

picture the bad intrusive thoughts in youe head as an edgy 13 year old and tell them to go be emo somewhere else

if someone makes you feel bad most of the time, stop talking to them. making yourself hang out with people who drain you is self harm. stop it.

4 years ago

Okey, the Russian performance has the exact level of batshit insane I’m here for. 12 points

7 months ago

It's crazy how you have to choose to be different and then once you do it's not even over - you have to choose it again and again forever and yes one day it will feel so natural you don't even notice it anymore but there is no short cut to there, just willpower and repetition

4 years ago
Source
Source
Source
Source
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Source

Here’s an explanation retweeted by the Minnesota Freedom Fund of what’s happening in Minneapolis right now. When it comes to all the voices clamoring to tell you what’s going on in Minneapolis, find the people who are actually IN Minneapolis and listen to what they have to say before you listen to someone five states away who insist, for example, that saying there’s white supremacist groups causing problems in Minneapolis right now is a liberal fantasy. It’s not. There really are white supremacists causing problems in Minneapolis right now and I’ve seen at least half a dozen people who have been verified to live in Minneapolis who have confirmed this and I’ve barely even been looking. This information is easy to find but you have to understand that when you want to find out what’s happening, you have to listen to the people who are living through it.

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24, they/them, nonbinary lesbian, disabled. Studying medicine, working on my internalised ableism, prioritising finding out what I like to do. I write, ish, or try to at least and that's something

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