Sometimes I’m Hardcore And Numb And Can Deal With Being In Pain For The Rest Of My Life And Other Times

hi, you there who are or are thinking about spending all day in bed, it’s okay, I’m not telling you to get up. I’d just like to do a quick check in to make sure you’ve got everything you need to be comfortable and safe.

Have you gotten up to take any meds you need?

Do you need to open or close your windows or curtains/blinds to make your environment nicer? (Fresh air, keep the cold out, sunlight/darkness)

Do you have a water bottle or a glass of water easily accessible? (Can also be juice, cordial, a meal replacement drink or anything else)

Do you have any over the counter or prescription as required meds you might need, like painkillers or anti nausea meds?

Is your phone or laptop charged?

Are you wearing comfortable clothing?

Do you have enough blankets/pillows to be warm and comfortable?

Do you have any snacks like fruit or chips or muesli bars in case you can’t get up to make a meal?

Are you able to change positions in bed (or sit up if you’re able)?

Do you have any regulation tools like fidgets, ear plugs, or journaling/art books or low energy hobbies you might want?

Are you being gentle and patient with yourself and your body today?

Thanks for doing this check in with me. I like to have some of these things prepared on my nightstand, or all together in the same space in my room so I don’t have to do as much work on low energy days. It can also help to have someone else prepare or get these things for you if you’re unable. Hope you have an uncomplicated day.

Hiii, I thought I'd make a post where I write some stuff about myself:) my handle used to be "trapped-in-a-burning-body"

So, intro facts:

▪︎ Danish

▪︎ 24 years old

▪︎ Nobinary lesbian

▪︎ My pronouns: they/them

▪︎ Disabled, lived with chronic pain for most of my life

▪︎ Studying medicine

I'm navigating going to uni while attempting to have a personal life and respect my body's boundaries. It's challenging on the best days, impossible on the worst. I've just learned how to bind books, and I've made a few too many already. I'm trying and failing to watch less netflix AND I've just started watching anime, which is very exciting. I love reading, mostly random medical books or fantasy, and I write poetry, mostly about being disabled.

I would love to connect with more people on here, so feel free to dm me:D

Yes, I did it, but do you have any idea how hard it was? How much pain it caused me? How much it cost? How many hours I spent in tears? How much I screamed in pain? How long it took? How many nights I spent paralyzed with fear? How hard it was to drag myself along by my arms, desperately clawing for purchase after my legs could go no more? How it felt to grit my teeth and bite back the bile and blood threatening to spill from my mouth, as every nerve ending shot fire through my veins? How the dread and the despair and the grief weighed me down until it felt like I was being crushed under the weight? Do you have any idea what it's taken from me?

But you shrug, and brush it off. "But you did it, didn't you? So it's fine."

"But you did it, didn't you? So clearly you didn't need help."

"But you did it, didn't you? So it obviously wasn't as hard as you were making it out to be."

"But you did it, didn't you? So you can do it again."

this... this is actually really helpful

notes for my impostor syndrome:

• no, it's not painful to walk for abled-bodied people

• no, healthy people don't usually use every chance they get to lean against walls or sit down

• no, ableds don't dream about shower stool

• no, ableds don't celebrate days when they're not in pain. because usually they're not in pain

• no, ableds don't want to stop walking mid-way, lay down on the ground, curl up and cry and whine from pain

• no, ableds aren't exhausted by their own bodies 24/7

shaking myself (very gently) . being in pain takes a lot of energy!!!!!! being in pain is exhausting!!!!!!! you are not lazy or weak because you need to spend so much time resting, this is your body coping with how much pain you’re in literally 24/7!!!!!!!!!

reblog if you want anonymous opinions of you

'BUTCH MANIFESTO'

inspired by 'FEMME SHARK MANIFESTO' by Leah Lakshmi Piepzna-Samarasinha

(ID under cut)

Ko-Fi (Commissions Open!)

[ID: an original poem titled 'BUTCH MANIFESTO'. the stanzas are all on the left side of the page and lineated, except for the first line, and last stanza. Poem begins:

Listen up! Butches hold it down! We don’t spend hundreds of pounds on designer clothes and black and white tuxes – we shop off the charity shop rack, hand-me-downs from our bois, our men, our women. Butch is not a glamour word - Butch is not for the white collars in their 9-5 and their office parties, Butch is not for the woman in a police uniform with short cropped hair, Butch is not for the masc who looks down on our femmes, Butch is not for the dumbass white people who call themselves stud, like our people haven’t taken enough from black lesbians, Butch is not for the politician or the soldier, it’s for those of us who get shit done and don’t throw anyone under the bus; who stand between our loved ones and the white-knuckled fist; it’s for the people who take a breath of relief when they get home and get to lay their head on the shoulder of their baby and say, it’s hard, and I need you right now; it’s for those of us with hard-soled feet, worn by hours of standing, just so people can buy some useless shit on a Sunday. Butch is for the primary school teachers, the neighbour keeping your package safe, the hairstylist, the barber, the youth worker, the locked up, the sectioned, the evicted, the boy on the dole. Butches hold each other up, Butches stand up for communities, no matter how different we might be.

Butches stand up for Butches, because only we know the shit we face, we don’t argue over what butch looks like for someone - their struggle doesn’t counteract ours. We’re brothers, sisters, siblings, lovers, mentors, we don’t fight over femmes or fight each other. We help up our siblings who can’t hold themselves up and shouldn’t have to.

Butch is recognising our hurt, our pain, and making sure nobody has to go through that, in the very least not alone. Butch is not reproducing that hurt, butch isn’t the transfem exclusion, the toxicity, it’s driving our girls and boys to the abortion clinic, it’s holding your femme’s hair back over the toilet bowl, it’s telling your darlin’ to take a deep breath, before you poke the needle into her thigh, it’s holding back on punching the catcaller because you know it’ll put your lover in more danger, it’s fishing in your closet for an old, dusty dress for your questioning girl, it’s never calling the cops, it’s carrying the Narcan, it’s gathering the funds for bail, it’s tipping the waiter, it’s kissing the bruised chin of a fellow butch who’s built like a brick shithouse.

Butch is not all muscle, able-bodied, white Butch is not all skinny and androgynous Butch is care Butch is NURTURE. Butch is a cane and an unsteady step Butch is putting down the ramp Butch is wheeling up it Butch is addict Butch is straight-edge Butch is diaspora Butch is desi Butch is antiracist Butch is socialist Butch is punk Butch is black Butch is brown Butch is fat Butch is fat-loving Butch is mental illness Butch is antipsych Butch is autism Butch is trans Butch is anger Butch is tears Butch is grief Butch is the old bull Butch is the closeted kid in a dress Butch is the baby dyke wearing a rainbow flag cape Butch is smile lines Butch is crinkled eyes Butch is crying in your friend’s beat-up car Butch is foetal position Butch is pink Butch is motherhood Butch is fatherhood Butch is cat-dad Butch is fucking Butch is getting fucked Butch is stone Butch is bashful Butch is humble Butch is cocky Butch is proud Butch is single Butch is uneducated Butch is poet Butch is poetry Butch is council estate Butch is gentleness Butch is bones and spit and the soft curve of our lower backs the clenched jaw under a double chin the hard-eyes that any femme can see right through the estradiol the testosterone the carabiner clink the thick hands the cellulite the bloody pads the tampon string the mood swings the sagging tits the top surgery scars the swinging cock the hairy pussy the protruding t-dick the leather harness.

Butch is eternity Butch is sewn into the fabric of atoms Butch is love and solidarity Butch is never leaving anyone behind and never selling anyone out.

End poem. In the bottom right corner, the poet is signed as 'Ren H.' End ID].

It's crazy how you have to choose to be different and then once you do it's not even over - you have to choose it again and again forever and yes one day it will feel so natural you don't even notice it anymore but there is no short cut to there, just willpower and repetition

For my American mutuals🫶🏼

Dudes healthcare is so fake. My ADHD meds are $940 without insurance. But they gave me a website of "coupons" which straight up looks like a scam website, and I got it today for $60! Just a coupon from a random website and it was $900 cheaper. America, I am confusion!! America explain!!

sometimes i think ive made peace with being permanently disabled & feel like even tho it sucks i can handle it. and sometimes i have to scream and scream and scream and cry myself to sleep because this is forever & i dont know how i’ll manage that