Hehe Thank You... I Uh.... Sorts Have A Collection

My gf bringing me water so I don't have to struggle up and down the stairs 💖

SHOW THE ART!!!!!

I'm trying to create amore positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically and they can really put me down. I wanna change that

I'd love to ask the question, what are you grateful for?

Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!

I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.

YOUR TURN!

Say it with me! Wheelchairs aren’t sad! Mobility aids aren’t sad! Mobility aids are instruments of freedom!

Can you believe I used to NEVER wear black? I only dressed in rainbows for 6 years. Then on day I decided to dress like this:

Growing up is crazy

If my doctors aren’t gonna take me seriously I’m going to make them

I went to a cardiologist, and he didn’t take me seriously at all. I got an off vibe from him. I asked the nurses, the receptionist, and my primary care doctor for a tilt table test. My cardiologist said no to getting me a TTT, all because I got better with water and salt intake (almost as if I have POTS???)

After bawling my eyes out m called a different cardiologist and hopefully they’ll actually listen to me. I just want a diagnosis so I can move on. I feel crazy.

My plan is to purposely decrease my salt and water intake so they take me seriously when I finally get a tilt table test. I’m ready to take drastic measures to be taken seriously

Call me a gymnast cause I am jumping through hoops trying to get a diagnosis

Just sending a message to say ‘hi’! And to say I totally get your frustration over “normal” lab results. All my labs have been normal and yet here I am, symptomatic! 🫠

Hello! Just because your lab results came back normal does NOT mean you are invalid and that there is nothing causing them.

I learned after going to the hospital yesterday (forgot I did that yesterday what fuck…) that I most definitely have POTS. I have slightly low sodium and heart palpitations. I have all the symptoms of it. When I treat my body like I have POTS it feels better

What I do to help:

The biggest fucking container of water CHUG IT

Salt, and I mean a lot

Compression socks are a gift from above

AND GET A TILT TEST DONE (I hope to do mine soon)

Thanks so much for your feedback! And that sounds really calming :) I encourage you to do it more often. In my settings, I'm able to put my phone on "Down Time" which allows access to only a few apps. I'm not sure what phone you have (I have Apple), but you could try that!

Digital Detox Helpung With Chronic Illness

I did what I like to call a "digital detox" by limiting 90% of the apps I could use on my phone, especially social media. I do this because I find so much negativity in the community. Trust me when I say I know being chronically is hard. But there is no reason any of us need a 24/7 reminder of it.

I also find it difficult when I'm stuck at home for a good majority of my days, with no work, it's hard to keep myseld entertained all day. I end up relying on my phone and I get incredibly sad in the process.

As some of you may know if you watch my YouTube, I was off social media for 7 months. I found it beneficial. While I'm ready to be back on social media, I needed a break

So I only used my phone to film my journey, listened, to music, and text two people. My time spent on my phone was half of what it usually was (really just using the camera app.)

Would you be interested in me uploading to my YouTube channel my journey of a digital detox while living with a chronic illness? Should I do this more often? Would you consider doing this?

Happy birthday to meee!!!!! Introducing my walker named Susie, throne on wheels

THANK YOU TO EVERYONE WHO DONATED TO MY GO FUND ME TO GET MY WALKER