I was so exhausted and has zero spoons left. Tookna three hour trip to snooze land. Probably shouldn't have taken that long of a nap, but you know what? I DESERVED THE DAMN NAP!!!! I might still be tire, but I'm feeling refreshed of spoons today.
If you need to rest go do it. No need to feel guilty about it
I'm gonna faint from anxiety, but I DID IT!!! Made My First YouTube Video
From chronically offline to chronically ill
Psst… HEY
If you are also queer, disabled, and/or have chronic pain, and wanna see art and other content about it, then feel free to follow my youtube ;))
I've been making shorts, and hopefully filming a full video when I have the energy!
One of my videos (´ . .̫ . `)
I feel so much better adding these to my drinks. May have more energy and can walk easier. But I feel better not amazing and cured. Why am I not cured? 🤨 I was told water and exercise is gonna cure me /sar
No but seriously I recommend these they’re great
I thought exercise would cure me so I did one sit up. My back hurts. Everyone is telling me to exercise, even my doctor. I’m trying. Will it actually help???
You're adapting: Instead of pushing yourself past your limits, you learn ways to make your life with chronic illness just a little easier. It could be sitting while you beush your teeth, or opting for a bath instead of s shower.
You stop telling yourseld you "aren't disabled enough:" Maybe you're an ambulatory wheel chair user or you don't always need a cane to walk around. Stop telling yourself that just because your chronic Illness differs from day to day, means you aren't disabled enough. Go buy that cane or walker and use it when you need to. You don't need anyone's permission. You don't need to prove anything to anyone
You've learned to ask for help: I know we all want to be independent and not rely on other people for help. But even able body people need help from time to time. Our body function differently, and it's okay to need extra help than the average person. You're not a burden.
You priorities your mental health: Mental health is extremely important especially when dealing with chronic illness. You may be grieving your old body or experiencing jealousy. This is all normal. Ways that have healped my mental health tremendously are making a gratitude list to remind me what I'm grateful for, creating a schedule, and minimizing the time on my phone.
And if you can believe it, I am e-begging once again. bills are all paid but we have no money to pay for food until my food stamps come in two weeks from now. anything helps and anything means the world.
venmo/paypal/cashapp : snowycrone
WORK IN PROGRESS
Represents my chest pain and rapid heart rate
Such a cute idea!
Showing off the friend I crocheted for my cane, his name is Rio (yes, Arcane reference). I've had him for a while but I love him.
The pink rose pattern cane was not my choice initially, it was just what was available to me at the time, but it has grown on me :)
My body: holy shit we just climbed a mountain. I think I might collapse
Me: bitch no we walked up the stairs