Just For Once I’d Like To Tell The Gate Agents And Flight Attendants That My Folding Wheelchair Is

boy it would be nice to be able to google something related to personality disorders, psychosis, intellectual disabilities, autism, DID/OSDD, etcetera without finding majority articles that are like “how to deal with a person with X” “how to cope with your child with X” “how to spot someone faking X” “can people with X be cured?”

a thing about being severe autistic adult on internet is people expect u know everything, every non-said/clearly stated boundarie, every slang, acronym, people mad when ask what things mean, need plain language, people rude because "how u not know this simple basic thing?" i feel so rejected and out of place.

i dont navigate things same as you, my brain works differently, i dont know lots things and often dont know how to search how to find dont know how to make sense how understand it hard makes me so frustrated and angry and sad.

people are so mean

Obnoxious how most anti-infantilization activism in many low support-centric autistic communities seems to rely on arguing we don't need support rather than reducing the stigma attatched to needing support.

Simply put, most anti-infantilization autistic activism I see is about how we don't need to be talked to slowly, need 24/7 care, don't need help with going to the toilet, don't need help shopping, etc. because we 'aren't toddlers'.

Which is a bad kind of activism, because, uh, many of us DO need those things. This is a fact. Ignoring it won't make it go away. And saying that only children need those things IS infantilization.

What we SHOULD be arguing is that adults who have medium to high support needs and who need help with or just can't do basic tasks, can't speak or can't speak well, need to have things explained slowly/repeatedly, etc. are still adults and deserve to be respected as such. Having higher support needs isn't childish.

No, people shouldn't assume that all autistics have higher support needs. But autistics with lower support needs also shouldn't erase those who do, when they are ALWAYS the ones most impacted by infantilization.

”autistic people don’t do [ extremely common higher support need , higher level autistic trait / symptom ] , that just stereotype”

you need include us too : you need include childish autistic person , you need include nonverbal autistic person , you need include autistic person who drool , you need include autistic people with intellectual disability , you need include autistic person with loud messy public meltdowns .

can not hide behind “it just stereotype” because that not true . there are many people very disabled by autism , you need remember us and include us .

Me Giving a Pressed Conference: our advocacy for the disabled must include the addict, the imperfect victim, those we despise; the right to autonomy and life cannot devolve into a popularity contest

Reporter I Hate (Not Sexual Tension): Does that include all the attendees of the Bored Ape NFT event who went blind

Me: *Blood streaming from my nostrils and eyes* david, it includes everyone

"i say the r-slur as reclamation" Ohhh okay then. Goodbye

poke hornet nest

my stance on ABA

(my stance on ABA)

as someone with (some) lived experience

most of it is shit.

for long time in past and even now, ABA only service available for a lot autistic people & family.

most of it (< ABA*) still is shit. (*this disclaimer applies to rest of repetition)

heard of more than enough cases of. insurance/school system/etc give pathetic number of hours/sessions for speech, OT, etc for autism but many more hours of ABA. or only cover ABA.

most of it still shit.

some speech & OT & other so called “alternatives to ABA” use behavioral & ABA tactics.

most of it still shit.

for many family, especially those with autistic person diagnosed as “severe” or level 3 and or have extreme behavioral issues etc. their option isn’t “ABA or no ABA.” often, option is “ABA or be labeled as abusive neglectful by government” or “ABA or have child taken away” “you ‘willingly’ enroll in ABA or we take and put them in ABA anyway” or “ABA or lose job.”

most of it still shit.

“ABA or lose job” because school not able or not willing help (because autistic person’s needs “that much”), you keep getting called to pick them up from school, from day care. other people not know how “deal with” your autistic family member, you know how help them a little more but also you sure as hell don’t and are just as lost. so you keep miss work to go pick them up from places that kick them out and you exhausted and you not get sleep because autistic family member needs pretty constant supervision and you not have respite and you not know how help and eventually your job fires you because you keep miss work. and oh did ever mention caring for disabled person extremely expensive? but oh btw there ABA agency you can send autistic family member to for up to 40 hour/week so maybe you can keep job and thus keep roof over head and can still put food on table for family for your autistic family member. oh they also say they may able help with autistic family member behavior so maybe they don’t get kicked out of every necessary service.

most of it still shit.

ABA agencies frequently kick out people deemed too severe or “cannot be helped” or too violent or too many behavioral issues or cause too much harm.

most of it still shit.

in world where may & very often do kill you for seeing you as different thus “threat,” ability mask life saving survival tactic. am talking about POC. am specifically especially talking about Black people. is teaching how mask greater evil than dead killed hatecrimed? sure, no one should have to choose between these two options, but world not care about your morals n your “should”s n your envisioned better future you may or may not be actively help build right now, these people need survive in real world here and now.

most of it still shit.

there (some. a few.) ABA survivors who went thru ABA in past and now who think ABA helped. helped them gain skill. help them prevent harm. some of them don’t see self as abused in ABA or traumatized by ABA. some see it as both abused and helped and grateful for help and hate abuse. some see as both abused and helped and don’t see amount of helped as ever worth abuse.

most of it still shit. (so many were & are abused. n abuse is abuse)

many newer ABA agencies realize ABA heavily criticized n labeled abusive & say they change methods & no longer practice old school ABA & now no longer abusive.

most of it still shit. (many of these agencies still do coercive abusive stuff even if call themselves changed)

some of them maybe truly changed. getting rid of abusive practices, focusing on skill building & adaptive functioning, child-led, instead of drills and forced masking.

most of it still shit.

talk a lot with people who so adamant about “all ABA abuse” “all parents who put child into ABA abused deserve get child taken away” who never was in personal proximity of ABA who. when ask to describe what ABA is in own words, not able to. or give generic response like “abuse & force mask”, but when ask to describe specific methods they do that, not able to. when ask them what discrete trial training and prompting is and what goals may look like and how they write behavioral analysis, never heard of any of them. say listen to ABA survivors, but not able name any individual names. just “oh listen to them online, if you actually listen like me you would know & i wouldn’t need say more so it really your ignorance.” but more often, just get reactionary shut down whole conversation be seen as ableist threat if even be asked first question. how you help advocate for ABA survivors if don’t even know what ABA is? or who ABA survivors? if cannot even talk about ABA? how even fight against your enemy if don’t even know what enemy look like, not able pick out enemy from crowd unless spoon fed?

most of it still shit.

found that. when am talking about ABA. from add nuance to encourage thought provoking questions to even rhetorically ask people to describe ABA. have to repeat emphasize that am not saying ABA all not abusive. even if it first thing i lead with. even if it super clear that am indeed criticizing ABA, just with more grey area and nuances than people used to. lot people will block me from this post just within some paragraphs. lot will block me over saying “most of it still shit” instead of denounce all ABA, when it clear that use of word “most” is deliberate choice n reason of said choice is in every corner of this post. others will finish reading (if even that) and all get out of is repeating “most of it still shit.” made similar posts year(s) ago. and still, find people vague post or explicitly post about me or my post, paint me as evil ABA apologist. whenever come across people who talk about “post where talk about ABA good,” stop and wonder, are they talking about me?

don’t want to talk about ABA because of this. tired, not worth it, often is bad starting point is turn off for people who never seen my posts when have other posts much easier entry point, n start off at bad start may cause them to not listen to me and maybe even other higher support needs and or nonverbal nonspeaking autistics in foreseeable future or ever.

you know, this post started off as “… so you all know i don’t think kindly of ABA right”

throughout write this post, don’t know which part am emphasizing more. the “most of it still shit” part or parts in between.

still. most of it still shit.

"Fun" little things I did as a pyromaniac growing up (with possibly a hint of pyrophilia)

-staring into every candle flame ever especially the tealights around the house

-staring directly into every fireplace, the automatic one my grandparents had, the fake one at Tim Hortons, the display fire at a lobby in what was probably an airport

-staring and watching the flames of campfires and bonfires, watching with a smile as marshmallows caught fire, paper and cardboard turned to ash, the wood for kindle cracked and popped as it turned to charcoal even watching while my eyes watered from the smoak

- playing with lighters once I taught myself how to use them and got over the hot sting of the metal on my thumb when it's been recently lit. Flicking it over and over till the sparks turn to a steady flame and doing it again when the flame dies out

- burned my hair clippings in my friends garage after she did my hair during high school

- burned old school papers I no longer needed

- accidentally burned a while in a plastic bag full of garbage and created a burnt mess in my room after trying to burn some receipts over the garbage so the ashes would fall into the bag but instead the stuff in the bag caught fire and yeah wasn't fun cleaning up

- stole from my mom's tealight stash and burned candle after candle

- left a candle burning too long and got wax everywhere

- enjoyed standing in the candle isle in stores and wishing I could have them all except the scented ones

- got happy when places my mom took me too had some sort of flame like a candle in the corner even if it was scented (cuz it was usually mild and okay enough for my sensory issues to handle, like lavender or vanilla)

- got sad or bored when other people blew out birthday candles

- waited for cars to catch fire while driving past a crash scene. They never did

- related way too hard to the meme with the girl and the burning house behind her

- thought burnt down buildings were aesthetically pleasing

- loved every fire scene in media especially loving stuff with explosions

- staring at YouTube videos for days about people burning stuff, blowing stuff up, watching lava, worked with hot metal etc

- got fixated on the tv whenever the fireplace channel was on

- got way to into science class when fire was involved and asked the teachers assistant to demonstrate again so I could sit with her and watch tirth up paper turn to ash

- proceeding to poke said ashes

- always trying to touch something after its been burned

- sometimes enjoying the smell of burnt food like popcorn or pancakes

- trying to see how long I could hold something that was on fire

- daydreamed about fire eating esp after mark and Ethan did it for unus anus that one time

- proceed to ask my mom for sparklers after my friends mom stood us on the back deck and and gave us all a bunch of sparklers to hold and watch fizzle for my friends birthday. Never got sparklers

- daydreamed about lighting the matches I had given my mom after finding them near our back yard. At least I was responsible and didn't let my little siblings have them when I found them.

- related far too deeply to this girl in a book of misfits who lit matches and put them out on her arm just to feel something.

- again with a girl who did something similar with a lighter on her thighs in some show my mom watched.

- loved every character ever with fire powers

- wished I was a firebender like Zuko and being afraid of the fact that I related to azula just as much as I did Zuko. But also thinking azuka was badass until I realized we're both just mentally ill.

- demanding fire resistance even if I didn't play a teifling in dnd

- dragons.

- saved and still save up things like leaves from my house plants just so I can burn them later

- purposefully trying anything to do with fire in my witchcraft, whatever involves fire and burning stuff I wanted to do

- made several attempts to start a fire without any idea how to make one

- tried lighting a fire in our firepit during winter, did not last

And much more

Pyromania is not just burning down a building one day, not just waking up one day and deciding to start fires on people's property or blow stuff up and become a terror and a menace.

Pyromania is much much more than staring at flames as a kid because its visually stimulating, and more than just being drawn to the fire element.

It's impulses, it's intrusive thoughts, it's the small things for satisfaction, it builds up, it typically starts during childhood development because we're all fucking mentally ill and likely very traumatized.

It's not quirky or cool, it gets scary.

It kept me from doing worse things, it saved me when my brain chemistry was so unbalanced I would have done a lot of regrettable things, it terrorises my mind with constant "what if x burned or you burned x" thoughts

And so on

It's never been a thing to take lightly

Most people really don't seem to know what this mysterious "residential care" means when it comes to disabilities.

"This person is severely disabled, they have to live in residential care."

Do you know what happens when a severely disabled person with high support needs who isn't aware of dangers and needs constant supervision applies for residential care?

They get turned down or kicked out a couple of days later.

This happens regularly, btw. Kids grow up and parents think "Oh, residential care sounds good", and then suddenly every institution, etc. goes "Sorry, we don't specialise in that, sorry, your child is too aggressive, sorry, your child can't stick to our sleep schedule, sorry, your child is too noise sensitive, sorry, your child HAS to participate in our weekly activities even though their disability makes it impossible for them to do so, sorry..."

People who can live in residential care aren't your "the worst of the worst" example. There is such a thing as "too disabled for residential care" and it's more common than you'd think! ☝🏼

"But what happens when someone is too disabled for residential care and their family can't take care of them? Surely everyone eventually ends up somewhere!"

They get passed around from institution to institution, but everyone eventually goes "Sorry, we can't keep them here", and it won't stop. Until, maybe, one day they're lucky and a fixed team of carers "adopts" them and tries to create some kind of assisted living from scratch.

Nobody talks about it, which is why it's always a big shock for parents who found a really good residential care place for their soon-to-be adult child and their child looks forward to moving out, and suddenly this wonderful residential care company turns their child down because it's too disabled. And then the next one. And the next.

So no, residential care isn't for "those with the most profound disabilities" - people with the most profound disabilities can't be in residential care at all.

Did you ever believe a creepypasta to be real?