Vascular Malformation - Blog Posts

✨✨✨ A caregiver taking care of me when my vascular malformation has a flare up ✨✨✨

🫰I wake up and I'm trying to do my best to hide it but they can see that my hand is stuck in a ball and I'm holding it to my chest

🫰" what's wrong little one, is your hand hurting?"

🫰I start sobbing "uhh! It feewls so baddd, it's all one fire and like it's gonna burst outta my hand"

🫰"oh no, let me help you with that" they take my hand and guide me over to the bathroom sink then turn on the cool water and holds my hand under it

🫰I lean into them "ohhh, that feewls soo good"

🫰"how long has this been going on, sweetie?"

🫰I bury my head in their shoulder, "... a couple days"

🫰"why didn't you tell me before? You know I would have helped you?"

🫰"Cause I need to be a big strong boy"

🫰"you can be a big strong boy and also come to me for help"

🫰 they take me over to my bed and put me under a bunch of covers, wrap my hand in a cold, wet towel, and put one of my stuffies under it so it's elevated

🫰 "You should rest for now, here's an Advil. What do you want to watch?"

🫰"ooo, can we watch The Wild Robot?"

🫰"of course little one!"

🫰 the next day they get a sling for my arm so it's easier to keep to keep my hand elevated and reassures me that it's okay for me to wear even if I'm not 'injured' because it's helping me be in less pain

If you're curious about what a vascular malformation is: a bunch of the veins on my arm and on my back are like bigger than they're supposed to be or like tangled and stuff so sometimes blood clots form (they're harmless but painful) or just sometimes some veins expand and that causes a lot of pain in my hand. I'm pretty sure it's best if I keep my whole body cool but I love being cozy so I never do that >:)